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Welcome! Welcome!

So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

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    So, on Monday Jackson was super active, like rolling, flipping, kicking all day.  It was the weirdest thing.  He had never been that active....

And here's what happened last week.....

...just in case you were wondering :)

Jackson had his regularly scheduled OT appointment on Monday.  His therapist (Carrie) is continuing to work with him on his tracking and grasping among other things.  Lots of play time is encouraged (oh darn!).

His two-month check-up was on Thursday.  He's weighing in at 13 lbs. 12.5 oz. (80th percentile) and is 24 inches long (75% percentile).  Dr. Alling nicely put that this would be expected because "his parents aren't exactly.....well, um.....small".  Thanks Dr. Alling for not calling out the obvious need to diet/exercise...appreciate it!  LOL

His head circumference is at 44.5 cm which is still off the charts but we expected this.  His head size was well off the charts before his shunt surgery, hence the need for the surgery.  Not to mention the fact that he comes from a family of big heads (just ask Jason and Denise - they've even weighed their heads to see whose head is the biggest!).  We see his neurosurgeon (Dr. Silberstein) tomorrow for a check-up and hopefully he still likes what he's been seeing. 

Jackson is such a tough, little guy.  He had to get his vaccinations at this appointment and he didn't cry at all.  This could be contributed to his Spina Bifida and reduced sensation in his legs, but I just like to think he's a tough guy!  No major issues with the vaccinations - no fever, just a little fussiness.  Which a little fussiness was okay with me...it just meant more snuggle time!

He's been having a great time with Grandma and Grandpa King during the day.  I know they take great care of him and spend lots of time playing and snuggling.  And I think we are all adjusting very well to me going back to work.  We're getting a nice routine in place - he is a total water baby, he loves his bath time!  Daddy will read him some books at night while Mommy feeds him his last bottle.  He's been sleeping in his crib ever since we came home from the hospital the second time (end of June) and usually sleeps around 7 hours straight.  Yes, we know...we are very lucky!  Occasionally he will have a bad night, but overall he's a good sleeper like his Daddy.

On Friday, Jax met his Physical Therapist (Tammy).  I wasn't able to make the appointment, but from what I hear she gave him quite the work out.  Her goal is to have him supporting his own head by 3 months of age, which is not that far away.  So, that means more tummy time for Jax, which he doesn't seem to mind.  That might have something to do with having to spend the first few days of his live on his tummy.  She's also working in stretching his neck and stretching/strengthening his leg muscles.

This past weekend was a pretty busy weekend with two birthday parties and visiting relatives that were up from Virginia.  And, it doesn't look like it's going to get any less busy in the next few weeks....birthday parties, family get-togethers, etc.  But, that's what summer is all about, right? 

Oh yeah, and Jason and I are turning 30 in a few weeks!!!!  Let the party planning begin!

Until next time.........
(p.s. I haven't forgotten that I owe you a post about the shunt surgery.....I'll have it done soon!)




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I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


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About Me

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Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
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