• Home
  • Posts RSS
  • Comments RSS
  • Edit
Blue Orange Green Pink Purple

Welcome! Welcome!

So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

Most Popular Post!

  • He's Here!!!
    So, on Monday Jackson was super active, like rolling, flipping, kicking all day.  It was the weirdest thing.  He had never been that active....

Jackson {Happy 18 Months}

18 Months!?  I can't believe it.  It seems like just yesterday I was heading to the hospital.....but I digress. 

Jackson actually turned 18 months on the 25th but we've been super busy and I haven't had a chance to post anything yet.  That, and let's face it, we all know I'm a perfectionist and a procrastinator and that's a horrible combination.  But again, I digress....

In honor of Jackson's 18-month birthday, I made some subway art for him to document some stats and milestones.  I found the idea on Pinterest (I know, big surprise) and recreated it in Publisher.  It took FOREVER but I think it turned out really cute.  Don't you?  At least it should be relatively easy to change it for future birthdays.


Jackson had his 18-month check up with his Ped on Wednesday.  All-in-all it was a great appointment.  We went over all of the reports he'd been given from his other doctors and discussed how all of his therapy is going and what upcoming appointments he will have.  Basically, we were told Jackson is doing great and to keep up the good work. 

Jackson weighed in at 28 lbs. 3 oz. which puts him in the 80th percentile.  Still bigger than most boys his age but that percentage hasn't increased since his last appointment so that's a good thing.  And it's definitely better than when he was six months old and measuring off the charts!  It's harder for Jackson to "thin out" because he's not as active as other children.

He is now 31.5 inches long which is in the 20 - 30th percentile.  This is a drop as last time he was in the 50th percentile.  This is a harder to accurately measure because he's a wiggle worm on the table but the doc wasn't too concerned about it.  It's possible that he was "over-measured" last time and this time it's more accurate.  Weight-bearing promotes bone growth and since Jackson isn't really weight-bearing at this point he will most likely be shorter than most boys his age.  This is one of the things that is Ortho is monitoring and we're hoping that by getting him a stander this will help get those bones growing.

His head size remains at 49 cm which is in the 80th percentile.  Again, this is another great measurement as before the shunt placement his head size was off the charts high.  Like wicked high. 

Jax was great throughout the entire appointment.  He gets the VIP treatment from all the receptionists, nurses and doctors while he's there.  Not to brag, but he's kind of a rock star.  :P  Everyone loves him and loves to watch him grow.  When I was checking out and making his next appointment (June 2013) I could see all the nurses across the way checking him out so we made sure to stop over and say "Hello and Happy Holidays".  One of them reminisced about how they all got to take turns holding him a few appointments back when I was in to get my ears flushed.  And how they remember when he was just born.....

It really warms my heart to hear that.  While I am not a fan of the OB/GYN department at Canandaigua Medical Group (long waits, just a number, incapable of delivering diagnoses, among other things), I absolutely love the Pediatric department, especially Dr. Alling and his nurse Sue.  Due to Jackson's Spina Bifida diagnosis there is a note in his chart that he only sees Dr. Alling which further promotes Jackson's VIP status (LOL).  They are great with the everyday stuff and know when it's appropriate to refer to specialists for their opinions.  They both have experience with children with Spina Bifida so that was a plus for us as well when we were deciding on a Ped for Jackson. 

Okay, back to the celebration.  Happy 18 Months Jackson!  We're so thankful that you are in our lives! 


Read More 0 Comments | Posted By Robin edit post

Here's What's Happening In Jackson's World: Assistive Tech

A couple of weeks ago we met with Linda, a Rehabilitation Technology Specialist from Fonte Health Care Solutions, to discuss options for assistive tech for Jackson.  Jackson's PT Shelley set the evaluation up as we'd expressed an interest to explore some other equipment options as Jax isn't a huge fan of the crawler we have.  We had the meeting over at Korpiel Physical Therapy and all of his therapists were there (OT, PT, Spec Ed) along with his SC Gail, my parents, Jason and myself, and of course the man of the hour, Jackson.

He's at the point where he craves mobility but his body won't cooperate, yet.  He can sit unassisted although he is still having issues with trunk support and endurance.  He can roll around on the floor like it's nobody's business.  But he's not crawling and he's only just begun to show interest in weight-bearing so standing/walking are a long ways off.  However, cognitively he wants to be up and running which frustrates him greatly. 

Linda observed how Jackson played and got a run-down of his current abilities from us and his therapists and discussed some of the options that might be available to him.  It was decided that she would find a stander with wheels and a wheelchair for Jackson to try out.

The stander discussed, I believe, would be something similar to the Rifton Dynamic Stander (pictured below).  The stander would strap Jackson into a standing position which would help to strengthen his legs and his core strength.  It would also put him in a new position that he enjoys to be in but can't accomplish on his own.  The stander would also have large wheels on the sides that he could propel himself.  He's got great arm strength and loves to spin things so I think he would really enjoy this option, especially if it helps him get across the room.  His Spec Ed therapist Phyllis also requested that the stander have a tray on it so that it would be easier for her to work (play) with him during sessions while also working his little leg muscles.

For more info on the stander go check out: Rifton Dynamic Stander

The wheelchair is just that - a wheelchair.  It would give him amazing mobility and independence.  Not only would he be able to push the chair on his own, but there would be longer handles on it so that we can push it as well.  It would most likely look something like this, I'm guessing:

Image from: 1-800-Wheelchair.com

It was stressed that by no means does this mean Jackson isn't going to walk.  This is just something to help him get around better and improve his quality of life.  His therapists will still focus on getting him to crawl, stand and walk. 

Some other things that we are going to try out are a bath system/seat and an adaptive stroller.  Just as he does not sit assisted for long periods of time on hard surfaces, he doesn't in the bath tub either.  But he loves to play and splash.  We had been using the infant tub we had and that was working out okay until he grew out of it (fat man in a little tub...hahahahaha).  I found a bigger infant tub at Weepeats back in September and that has been working great, but still not as fun for Jackson as he would like.  The bath seat should, again, provide more independence and let him do what he loves a little easier....play!  Some of the options I've seen can be found here.  The stroller would provide better positioning and support for Jackson and most of them look like traditional strollers.  Go here to see some of the options provided by 1-800-Wheelchairs.com. 

Linda was going to find some models for Jackson to try and then we are going to meet again and see what he does with them and figure out which device would be the best fit.  We're so excited to see how he reacts and what he'll do in them.  I actually just got a call from Shelley today that Linda had found everything and wanted to meet up next week.  So, more details to come soon!
Read More 1 Comment | Posted By Robin edit post

New Hoodie Alert!

One might say that Jackson has enough clothes.  That he doesn't need any more clothes, especially hoodies.  I mean the kid has more hoodies than I do and I've got a lot of them. 

But I saw this one on MamaBargains a few weeks ago and couldn't resist myself.  It just came in the mail today and I was so excited I made him try it on ASAP.  He's such a good sport!


Totally appropriate and needed, right? :)

TTFN, gotta go.  Big day tomorrow...opening day of deer season!  Gotta get up early and get Jason out the door.  And then go back to bed.  LOL.
Read More 0 Comments | Posted By Robin edit post

{Date Night} Whip It!

Get your mind out of the gutter.....I'm not going to go all Fifty Shades with this post :P

As previously mentioned, for our 5th anniversary my gift to Jason was a series of pre-planned dates for the next year.  Because the "passport dates" are on-going I can't really divulge the details yet.  He's been known to get bored and actually read my blog, so I don't want to spoil the surprise of dates to come.

However, the other date each month I can totally tell you about (after they happen of course).

October's date I've playfully titled "Whip It".  A while I ago I got a Groupon notice for the Roc City Roller Derby.  I thought that would be totally cool to go to, but wasn't sure if Jason would like it or not.  I brought it up and he was into it, but when I went back to purchase the tickets, the deal was over.  Boo!  That's okay though because regular ticket prices are pretty reasonable.

I never brought it up again because my intention is that these dates are going to be surprises at least as far as what we would be doing.  But I at least had to tell Jason not to have any plans on Oct 13th or else he'd been gone doing something here or out hunting there.  But telling him to keep that date open prompted intense, irritating interrogation until I relented and made him guess what we were doing.  It was quite comical to hear his guesses because he was guessing stuff that I never thought he'd want to do - various sporting events, plays, comedy clubs, concerts, circus!?  It def. gave me some future ideas!

He finally guessed roller derby.  I let him pick the seats and he chose the suicide seats - front row on the floor.  It ended up being really fun to sit there at least once, but if we ever go again I think we'd have a better view from the bleachers.  If you ever get a chance to go see this, you should.  It's a pretty laid-back, fun time.  Not too over-crowded.  Fairly cheap tickets, refreshments are reasonably-priced.  The bouts were pretty intense.  Right-up-to-the-last-minute, final-heat intense.  After the last bout we even jumped up and participated in the winners lap. 

As per our usual tradition, we left with souvenirs.  I got a new t-shirt and Jason got a new hat.
Our swag
To get ourselves psyched for the date, we watched Whip It with Ellen Page, Drew Barrymore and Kristen Wiig.  The RCRD isn't as hardcore as the movie, but that's mainly because going slower allows for more points to be earned. 

I think if I hadn't procrastinated so much (as I usually do), I would've done something creative to better explain the rules ahead of time as for the most part we were pretty confused as to how they were earning points.  I had also found a roller derby cookbook that I was going to use to make something for breakfast that day, but I never ended up doing that either.

We did, however, go to the rollers and revellers website and used their name generator to come up with our roller derby names:

Jason - Thorn Skeletor
Mine - FreeBird (okay, I totally kept hitting it until that one came up.  Pretty appropriate don't you think?)

It was really neat to see all of the names that the skaters, refs and officials had too.  How do people come up with them!?

Overall, it was a really fun date night.  WROC actually just did a story on the RCRD this week.  You can check it out here.  The RCRD's next bout is tomorrow night.  I highly suggest if out and about in Henrietta to go check it out.  Tomorrow's bout is benefiting Harbor House.  Harbor House is like the Ronald McDonald House but for the families of adult patients.  They provide temporary lodging to the families of adult critical care patients who live outside the Rochester area and are getting treated at URMC.  All of the RCRD's bouts benefit one or more of the many women's, family or children's charities in the area.  How awesome is that?!

I can't wait until this month's date night.  No hints this time though.  ;)

Catch ya later!
Read More 0 Comments | Posted By Robin edit post
Newer Posts Older Posts Home

Another Smith Family Blog


I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


Looking for an Older Post?

  • ► 2015 (4)
    • ► September (2)
    • ► March (2)
  • ► 2014 (8)
    • ► August (1)
    • ► June (1)
    • ► May (2)
    • ► March (3)
    • ► January (1)
  • ► 2013 (49)
    • ► November (1)
    • ► October (5)
    • ► September (4)
    • ► August (4)
    • ► July (11)
    • ► June (7)
    • ► April (2)
    • ► March (4)
    • ► February (1)
    • ► January (10)
  • ▼ 2012 (28)
    • ► December (1)
    • ▼ November (4)
      • Jackson {Happy 18 Months}
      • Here's What's Happening In Jackson's World: Assis...
      • New Hoodie Alert!
      • {Date Night} Whip It!
    • ► October (5)
    • ► September (4)
    • ► August (1)
    • ► July (1)
    • ► June (2)
    • ► May (3)
    • ► April (2)
    • ► March (1)
    • ► February (1)
    • ► January (3)
  • ► 2011 (28)
    • ► December (7)
    • ► November (1)
    • ► October (14)
    • ► August (1)
    • ► July (2)
    • ► May (3)

About Me

My photo
Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
View my complete profile

Followers

Another Smith Family Blog

Powered by Blogger.
  • Search






    • Home
    • Posts RSS
    • Comments RSS
    • Edit

    © Copyright Another Smith Family Blog. All rights reserved.
    Designed by FTL Wordpress Themes | Bloggerized by FalconHive.com
    brought to you by Smashing Magazine

    Back to Top