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Welcome! Welcome!

So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

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  • He's Here!!!
    So, on Monday Jackson was super active, like rolling, flipping, kicking all day.  It was the weirdest thing.  He had never been that active....

Here's What's Happening in Jackson's World: The Bath Chair has Arrived!!

Finally!  It's here.  Okay, I take that back.  We've had it for about a month.  We've just been so busy enjoying it that I haven't posted about it until now.  <----And if you believe that that's the true reason I haven't blogged about it yet, then I have some beautiful oceanfront property to sell you as well.  ;)

We went with the Wenzelite Otter Bathing System.  Why did we get Jackson a bath chair, you ask?  Well, while he's vastly improved in terms of core strength in the past few months he's still lacking the ability/endurance to sit up completely on his own for long periods of time.  Mix that with the buoyancy of water and bath time just isn't safe for him.  He cannot be in the tub by himself without one of us holding him the whole time.  And that's no fun!  No independence whatsoever makes for a slightly cranky Jackson.  We had been making due with an infant bath tub (smaller size, more support, able to play more by himself without needing to be braced by us) but even after upgrading to a larger model he's still a wee big for it.

Being strapped into the bath chair allows Jackson to be comfortable and safe in the bath tub.  He can play on his own without fear of losing his balance and slipping down into the water.  The seat is adjustable so when it's time to wash his hair we can lean him back and get-r-done.  There are also mutiple strap positions so the chair will grow with him.  It also helps save Mommy and Daddy's backs and makes it so much easier to actually bathe him when he's done playing!  He doesn't mind being strapped in and totally loves that there is so much more water to splash in (cue Mommy and Daddy getting even more soaked than before!).  He already loved bath time, but this makes it soooo much better.  He would stay in there all night if we let him.

We're excited for summer too because the chair should fit nicely in the kiddie pool.  Can't wait!!

I can't end the post without pics of Jackson actually using the chair.....so, here you go!







He was a little leery at first but by the end was having a grand ole time.  Big thanks for his former OT MacKenzie for helping us get this!  I didn't realize until we got it how much it was needed.

Peace out.   



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I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


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About Me

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Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
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