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Welcome! Welcome!

So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

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    So, on Monday Jackson was super active, like rolling, flipping, kicking all day.  It was the weirdest thing.  He had never been that active....

Halloween!!!



It didn't take that long to come up with an idea for Halloween this year.  I had actually thought of it last year, but wasn't exactly sure how to pull it off using Jackson's stroller.  This year though Jackson has a wheelchair, so it was much easier to adapt that.  

Enter, CoolestHomemadeCostumes.com!  They had a great article on how they adapted a wheelchair for a biker costume.  That's right, a biker!  I mean, c'mon, it's only natural that Jax would be a biker at some point for Halloween.  He's already got the gear, he just needed the wheels.  



I showed Jason the website and let him do most of the work.  I'm pretty sure he didn't mind as he got to play with his welder.  ;)  One of our friends graciously donated some bicycles that their kids no longer used.  Jason cut the front off of one of them, rewelded some supports and made a plate at the bottom to fasten it to the foot pedal on Jackson's wheelchair.  I think Jason and his buddy Jason (I know, there are a ton of Jasons in our lives!  lol) had a great time working on this!








We had quite a few Halloween events to attend this year and each time the costume changed just a little bit.  In the end, we ended up adding Jason's tool pouch to the front of it, along with a skull headlight (skull was purchased at Jo Ann Fabrics, Jason painted it and then we put an LED light inside), a bike mirror, and a horn.

We had a lot of fun at each of the functions we attended.  We participated in the Al Sigl Community WalkAbout at EastView Mall which benefited the Al Sigl Center.  The money we raised specifically went towards the Rochester Rehabilitation program.  One of Rochester Rehab's programs is SportsNet, which sponsors the Rochester Rookies.  We decided at the last minute to enter the costume contest and Jackson ended up winning Cutest Male.  He came home with a pretty fun gift basket.  We also met some pretty awesome people - Ms. Wheelchair New York and Dino from Fickle 93.3!  Jackson loved Jessica - he thought her tiara was pretty!



Jackson's prize for winning Cutest Male

Jax with Ms. Wheelchair New York <3

We also went trick or treating at Wegmans with a good friend of ours as well as at my work.  My place of employment is the best place to go trick or treating!  You make out very well there - the cube farm is full of places to stop and get candy.  Plus, they do crafts and have cider and donuts!  It's totally worth the drive up there.  We, er Jackson I mean, really enjoyed all that candy!


Trick or Treating at Wegmans

Trick or Treating at Mommy's Work

And to end our Halloween festivities, we went trick or treating on Halloween in Canandaigua.  







We are already in the planning stages of next year's Halloween costume.  We've got a few ideas floating around.  What do you think Jax should be?



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Another Smith Family Blog


I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


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About Me

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Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
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