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Welcome! Welcome!

So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

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    So, on Monday Jackson was super active, like rolling, flipping, kicking all day.  It was the weirdest thing.  He had never been that active....

Finally Friday

(a couple days late)

Ahh, finally Friday.  Finally, the end of the work week.  Finally, we got our Christmas tree.  Finally, we got down to visit the Vaughan's.  Finally Friday!

I am so behind with Christmas, at least decorating that is.  I got the living room decorated back in the beginning of November because we were having family pictures taken.  Everything else is still in totes.  We hadn't even gotten our real tree yet.  Well, at least we have one thing checked off the decorating list.  We got the tree on Friday.  Now, it's time to finish decorating!  That's my goal for the rest of this weekend.  I mean, really, why bother?  Christmas is only a week away.  But, we can't have Christmas without decor.  My house doesn't look right without a tree in every room!  So, decorating shall be done!

We also took a little time out on Friday before Jackson's 6 month appointment to go down to the farm and visit the Vaughan's.  Jason has been friends with them since he was little and we felt bad we hadn't been down there yet.  There are a lot of people that we haven't visited yet and we really need to start making the rounds.  New Years resolution #1, maybe?

Friday afternoon, Jax had his 6-month check-up.  It went really well.  He is 26 inches long and weighs 21 pounds 14 ounces.  I know, he's a big boy.  But the doc is very pleased with how he is doing.  He is actually back on the growth chart and is starting to follow the "normal" growth curve.  Last time, he had gained a little too much weight. 

The doc remains a little concerned about his delayed motor skills development but he's receiving PT and OT already so we've got it covered.  I had told Dr. Alling that Jax's PT, Becca, was concerned about his ankles and wants to get him set up with AFO (ankle foot orthosis).  Right now he is not able to hold his feet/ankles straight and she feels that the AFO will help with that.  There was a lot more medical jargon on the note from her that I gave to the doc.  Bottom line, he wrote a prescription that we can use to get his set up with the AFOs (splints). 

Jax had his 6-month shots too.  He did great, as usual.  He has decreased sensation in his legs due to his SB so he usually doesn't even feel the shots.  Although, this time his legs did move in reaction to the shots being administered, which had never happened before.  Maybe he's getting more feeling in his legs!?!  Only time will tell....

Oh yeah, I failed to mention that he was the biggest flirt all day....smiling, batting his long eyelashes.  He melts hearts :)


Somewhat related to the appointment Friday: I heard from the Audiology group at Strong and we have a hearing test scheduled in February.  More on that when the day gets here. 

Okay, see ya later...gotta go decorate.  Christmas is a week away!!!!!!
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I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


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About Me

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Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
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