But enough of me talking. You all want to see videos, don't you? ;)
This is Jackson's very first moment in the wheelchair:
He is a natural! It was so amazing to see how he seemed to know exactly what to do with little instruction. I'll admit it. I cried. I'm a crier now. It just happens. To see how well he was doing, how much he liked it and what it means for him going forward was a little overwhelming and the tears-o-joy just started a-flowin. Luckily I was able to get it under control so that no one had to witness the full-on "Robin Cry". Trust me, you don't want to see it.
I know, enough talking already get back to the videos!
Here's Jackson's first time in the stander:
Linda said that in the 31 years that she's been doing this Jackson was not only one of the youngest that she's fit equipment for but also one of the quickest to pick up on how to use them. Way to go Jackson!
Later that afternoon he got into the stander again and was going all over the place. Check out this video:
The wheelchair belonged to someone so we couldn't take that home with us but the stander we have for at least the next week. We meet again next Friday to discuss how he liked the stander and finalize what equipment we'd like to get Jackson. Personally, I want it all! Each piece is good for him in different ways. But, insurance and Early Intervention may not feel the same way.
So, we've been documenting how he does in the stander and will continue to do so for the next week. Things like when he's in it, for how long, what he does, how he likes it, etc. We've got videos and pictures and a little journal. His therapists will be writing letters of justification and hopefully that will be enough to get our insurance to cover a portion of it and for Early Intervention to pick up the rest. However, we've been told that it's more difficult in Yates County to get funding from EI and we'll probably have to put up a fight to get it. Which honestly I think is a load of {expletive}. From what Linda was telling us it's so much easier to get these types of things approved in Monroe County as opposed to other surrounding counties. Which doesn't make sense to me, but such is life. I guess this will be a good test as to whether or not our current Service Coordinator is as committed and as good at her job as she claims to be.
We won't stop fighting until Jackson gets this. He deserves it!
But let's not end this post on a sour note. Let's look at some more pics of Jax in action, shall we?
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| "Hey, whatcha doin back there?" |
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| "Are you done yet? I wanna get moving!" |
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| The "pit crew" strapping him into the stander |
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| Watches make a great distraction tool |
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| "Finally! I can get movin'! " |
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| "I'm coming to see you Grandpa!" |
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| Rockin' Roller |
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| Daddy and Shelley (PT) helping him out of the stander |
way to go Jax. Robin and Jason you'll be on the run now
OMGOSH! Robin, we have tears in our eyes too watching these videos. Boy, do I love this little guy.
I remember those days, so exciting. The road is wide open for him now, just watch out for your toes :)