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Welcome! Welcome!

So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

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  • He's Here!!!
    So, on Monday Jackson was super active, like rolling, flipping, kicking all day.  It was the weirdest thing.  He had never been that active....

Working Hard or Hardly Working


I'm going to say....working hard!  At least Jackson has been anyways...when he feels like it.  ;)

In typical threenager fashion, he'll do what he wants, when he wants and he's been giving all of his therapists (and teachers too for that matter) a peak at the stubbornness he's inherited from both sides of the family.  <---You see, Jason, I didn't blame just you that time like I usually do.  ;)

Jackson has been working a lot on core strength, standing, walking and getting in and out of his wheelchair during PT.  Aqua therapy has helped a lot with core strength.  He still goes once a week for a half hour session.  He's also turned most bath times into a therapy session as well by attempting to do the backstroke every chance he gets. 

They've been trying different walkers out with Jackson at school to see if we can find one that would be a great fit for him and his current abilities.   The first one they tried actually offered Jackson too much support and he just let it do the work for him.

The walker he tried yesterday though actually appears to be a better fit.  He'll still probably need some sort of sling to provide some additional support but he seems to actually use this particular walker as it's meant to be used.  He's also been attempting some walking during therapy without a walker.  He relies heavily on using his PT for balance and support, but seems to be doing pretty well in that arena too.  He's not ready for independent walking and still requires a lot of support, but he's getting there.  We're SUPER proud of him.

Nama and Papa were able to head on over to school yesterday and watched Jackson during PT.  And, of course they got video!!!

Check these out:





It seems only fitting as it's Thursday to also throw in a little #tbt action and show this little gem from way back when.  His first "steps".  ;)



Peace out.





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Another Smith Family Blog


I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


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About Me

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Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
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