• Home
  • Posts RSS
  • Comments RSS
  • Edit
Blue Orange Green Pink Purple

Welcome! Welcome!

So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

Most Popular Post!

  • He's Here!!!
    So, on Monday Jackson was super active, like rolling, flipping, kicking all day.  It was the weirdest thing.  He had never been that active....

Here's What's Happening In Jackson's World: 12-Month IFSP Meeting

I'm a little behind on this update and he's made some great progress since the end of June but I thought you'd like to know anyways....

Every six months we get together with all of Jackson's therapists along with our Early Intervention Service Coordinator and have an IFSP meeting.  IFSP stands for Individualized Family Service Plan.  Also in attendance are reps from Yates County and of course, our parents.  We met at the end of June to discuss how Jackson is progressing and to make a plan for the next six months.

These were his goals for physical therapy (PT) for the prior six months and his current status:
  • Move prone to supine (belly to back) - Achieved (inconsistently)
  • Forward and side protective reactions - Emerging
  • Propped sitting with head control - Achieved
  • Reach for toys while upper extremity weight bearing - On-going
  • Monitor AFO use and tolerance - On-going
Overall, he's making progress but still delayed for his age.  He is showing more trunk strength and endurance is supported sitting but fatigues quickly during unsupported sitting.  He is beginning to develop righting reactions but is inconsistent with his ability to catch himself sideways and backwards. 

It was decided that we would pursue some assistive tech devices to help him explore more.  The first one is the crawler which I talked about here. 

His PT goals for the next 6 months are:
  • Roll both directions consistently
  • Transition prone to sit
  • Monitor assistive tech needs
  • Develop righting reactions in all directions
  • Sit independently
These were his goals for Occupational Therapy (OT) for the prior six months:
  • Transition between early motor positions, strengthening by maintaining and assuming weight-bearing positions
  • increasing duration in supported sitting
  • Bringing toys to midline
  • Manipulating toys using two hands simultaneously
  • Improving overall hand use
  • Self-care skills (brining a spoon to his mouth, finger feeding, oral stimulation in order to tolerate a variety of food textures)
Here's what MacKenzie (his OT) had to say about Jackson:
  • "Jackson is a happy little boy how has become more interested in exploring his surroundings.  He has recently demonstrated numerous emerging skills, such as simultaneously holding an object in each hand, bringing objects to midline, and maintaining a purposeful grasp for longer periods.  Jackson has improved his release patterns when successfully finger feeding himself small Gerber puffs; he continues to use a raking pattern to retrieve the food and place in his mouth, he occasionally integrates a lateral pinch into the process.  Jackson removes pegs from a pegboard and bangs a cup with a spoon with intent.  When looking at a book Jackson has successfully opened and turned pages.  Overall, Jackson and his family are a delight with who to work."
His goals for OT for the next six months:
  • Improve functional use of hands as seen by:
    • Transferring objects between hands
    • Manipulating objects for sustained periods
    • Holding two objects (one in each hand) simultaneously
    • Reaching crossing midline
    • Purposeful grasp/release patterns
  • Transitioning between positions (rolling, sitting, etc)
  • Eat a variety of food textures using spoon
  • Remove his socks using his hands
So, what does this all mean?  He's getting there but still delayed in both gross motor and fine motor skills due to limitations caused by his Spina Bifida.  There are no major causes for concern as these delays are somewhat to be expected.  It was decided to continue with his current plan (PT twice a week and OT once a week) and also get him evaluated for speech services (read about that here).  There are no changes to his AFOs at this time but once he meets the Orthopedic Surgeon in October that may change.
Read More 0 Comments | Posted By Robin edit post

0 Comments



Post a Comment

Newer Post Older Post Home

Another Smith Family Blog


I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


Looking for an Older Post?

  • ► 2015 (4)
    • ► September (2)
    • ► March (2)
  • ► 2014 (8)
    • ► August (1)
    • ► June (1)
    • ► May (2)
    • ► March (3)
    • ► January (1)
  • ► 2013 (49)
    • ► November (1)
    • ► October (5)
    • ► September (4)
    • ► August (4)
    • ► July (11)
    • ► June (7)
    • ► April (2)
    • ► March (4)
    • ► February (1)
    • ► January (10)
  • ▼ 2012 (28)
    • ► December (1)
    • ► November (4)
    • ► October (5)
    • ▼ September (4)
      • Happy Birthday to Us!
      • Here's What's Happening In Jackson's World: 15-Mon...
      • Here's What's Happening In Jackson's World: Speech
      • Here's What's Happening In Jackson's World: 12-Mon...
    • ► August (1)
    • ► July (1)
    • ► June (2)
    • ► May (3)
    • ► April (2)
    • ► March (1)
    • ► February (1)
    • ► January (3)
  • ► 2011 (28)
    • ► December (7)
    • ► November (1)
    • ► October (14)
    • ► August (1)
    • ► July (2)
    • ► May (3)

About Me

My photo
Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
View my complete profile

Followers

Another Smith Family Blog

Powered by Blogger.
  • Search






    • Home
    • Posts RSS
    • Comments RSS
    • Edit

    © Copyright Another Smith Family Blog. All rights reserved.
    Designed by FTL Wordpress Themes | Bloggerized by FalconHive.com
    brought to you by Smashing Magazine

    Back to Top