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Welcome! Welcome!

So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

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    So, on Monday Jackson was super active, like rolling, flipping, kicking all day.  It was the weirdest thing.  He had never been that active....

Happy Anniversary Jackson!


Two years ago this past Sunday, Jackson was wheeled into the OR to have his second surgery - the placement of his VP shunt.  That means....drum roll please....Jackson has been surgery-free for two years!  Yahoo!

Of course, I'm mentioning this momentous occasion while knocking on wood, praising God, throwing salt over my shoulder, crossing my fingers and whatever else I need to do in order to not jinx this and tempt fate.

It is entirely possible that individuals with Spina Bifida will have to face multiple surgeries throughout the course of their life.  They can be related to the Spina Bifida itself such as the lesion closure (like Jackson had when he was two days old) or it can be due to one of the many secondary conditions related to Spina Bifida. 

Conditions such as:
  • Hydrocephalus (VP shunt placements, shunt revisions, etc),
  • Chiari II Malformation (decompression, etc),
  • Various Orthopedic issues (clubbed feet, hip dislocation, scoliosis, etc),
  • Tethered Cord (Tethered Cord release)
  • Various Urinary and Bowel issues (Mitrofanoff procedure, MACE, etc)
Jackson has only had the two surgeries - lesion closure at 2 days old and VP shunt placement at 1 month.  We're extemely grateful that those are the only two surgeries that he's needed so far (again, knock on wood, etc).  Want a refresher on the two surgeries?  Go check out this link to read about his lesion surgery and here to read about his shunt surgery.

I'm not going to sit here and say that Jackson won't need any or all of the procedures listed above (or any of the many others that I didn't even mention), because I'm not living in a perfect world over here full of sunshine and lollipops.  Realistically, at some point, we'll have to watch our little guy get wheeled away into another operating room. 

In the meantime, I'm going to continue knocking on wood, praying for the best and rejoicing in the fact that we've been surgery-free for 2 years!!  Woot woot!

Let's keep this streak going strong for a long time, little buddy!

Pre-op {Lesion Closure - 5/27/11 - 2 days old}

Post-Op {Lesion Closure - 5/27/11 - 2 days old}


Father's Day 2011 {5 Days before VP Shunt Placement}

Post-Op {VP Shunt Placement - 6/23/11 - 4 weeks, 1 day old}
Mommy and Jax the day before his surgery anniversary at the Spokes for Spina Bifida event.  More about that later!


Read More 1 Comment | Posted By Robin edit post

1 Comment

  1. Jane Smith on June 26, 2013 at 4:29 PM

    Our prayers are with Jackson everyday.

     


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Another Smith Family Blog


I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


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About Me

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Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
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