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So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

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IFSP Update - 24 Months (The "Details")



As promised, here's a rundown of the progress reports from Jackson's latest IFSP meeting.  Grab a drink, pick out a snack and get comfortable because this is a long one.  :)

(Unless otherwise noted, everything written below is taking directly from the reports)

Physical Therapy

Summary - Jackson is a delightful little boy who continues to make progress with his gross motor skills.  He has worked hard at developing his trunk strength and is able to sit independently.  He is able to transition independently from the floor to a sitting position.  Jackson is able to commando crawl with evidence of some hip muscle recruitment and his upper extremities.  He has shown progress with his strength and endurance when in all fours and has consistently been improving with his ability to hold all fours independently and to weight shift from side to side while reaching or engaging in an upper extremity activity.  Transitioning into all fours continues to be challenging and he continues to require assist.  Jackson has also been working to sit to stand with assist at a supportive surface to promote his LE strength.  He obtained a dynamic mobile stander and a wheelchair and presents with a good ability to negotiate both devices around his environment.  He is wearing his AFOs daily and recently has started wearing a TLSO mostly at night and intermittently during the day to address his Scoliosis.

Gross Motor Summary - (gross motor skills are at greater than 33% delay)
  • In the area of stationary skills, Jackson scored at the 11 month level indicating below average skills in this area.  Jackson was able to rise to a sitting position from his back and stomach to get a toy without difficulty.  He was also unable to maintain a high kneeling position due to decreased trunk strength and lower extremity weakness.
  • In the area of locomotion skills, Jackson scored at a 7 month level representing below average skills in this area.  Jackson is able to roll from his back to stomach and can move forward commando crawling at greater than 3 feet.  He is starting to raise his hips while lying on his stomach, but is unable to get into an all fours position without assistance or creep on all fours at this time.
  • In the area of object manipulation, Jackson scored at a 12 month level indicating a delay in age appropriate skills.  Jackson was able to catch a ball while in a sitting position and roll it at least 3 feet using hand/arm contact.  Jackson demonstrates emergence of ball skills when flinging a ball while standing in a mobile stander.
Goals for the Next Six Months - 
  • Jackson will transition to an all fours position independently.
  • Jackson will begin to creep with assist.
  • Jackson will begin to pull to stand with assist.
  • Jackson will throw a small ball overhead at least three feet while in the mobile stander.
  • Jackson will be able to navigate around obstacles for approximately 20 feet independently while in the wheelchair.


Occupational Therapy

Summary - Jackson does well during therapy sessions and continues to progress slowly in the areas of fine motor and self-care skills.  He has shown improvement in his willingness to tolerate new positions and to navigate his environment more readily.  Jackson plays in a supported quadruped position, prone over a ball or wedge, side sitting, and supported kneeling.  He is able to spontaneously cross midline during play.  Jackson still rolls and shows more of a commando crawl.  He reaches for objects across midline and shows purposeful grasp and release of objects.  Jackson also is demonstrating an emerging pincer grasp on small objects.  He continues to be challenged with associated reactions in his hands (involuntary movement that copy what the other hand is doing).  This has presented challenges with bilateral tasks such as holding an object in one hand while retrieving an object with the other.  Therapy continues to focus on breaking up these patterns.  Jackson's mother reports that he is doing better with utensils during meals, and he uses an open cup during meals with some assistance to hold it and control spillage.  He appears to enjoy most activities presented to him and it is a pleasure to work with Jackson.

Progress Towards Goals - Jackson has begun completing simple wooden inset puzzles with minimal to moderate assistance.  He reaches for small objects using a raking grasp, although he is showing an emerging pincer grasp, and is able to drop small objects into a small opening.  His endurance and attention to tasks has also shown improvement.  Jackson is more tolerant of being positioned and handled.  Jackson loves to play; toys that are colorful, show movement, or make noise are often very motivating for him.


Goals for the Next Six Months -

  • Improved functional use of hands for improved fine motor and acquisition of higher level fine motor skills.
  • Improved self-care skills, such as independent cup use.
  • Acceptance of new textures during meals.


Specialized Instruction

Summary - Jackson is an adorable 25 month old toddler who is seen one time per week for individual special instruction services at home.  Jackson continues to make gains during therapy.  One area that has seen significant progress is Jackson's willingness and ability to manipulate objects in play.  He demonstrates problem solving skills, improved eye-hand coordination, improved fine motor skills, and improved functional skills.  Jackson is beginning to play with toys in an imitative manner and is better able to accept direct commands (before he is allowed to free play with the materials).  He has made significant progress on demonstrating receptive vocabulary skills such as choosing a names picture and matching pictures.  Jackson needs cues to "use his words" to indicate what he wants and this is an area of need for him.

Progress Towards Goals - 
  • Jackson will comply with simple commands and perform requested actions.  Progress made, with cues.
  • Jackson will demonstrate a developing vocabulary by pointing to named objects, pictures, clothing items.  Progress made - Jackson chooses named picture cards with increased accuracy.
  • Jackson will use at least 6 signs consistently and meaningfully.  Not achieved - Jackson verbal expressive skills are improving and he does not typically use signs during therapy.
  • Jackson will participate in pretend play activities - ex. imitating play skills and vocalizations.  Progress made, with cues.
  • Jackson will imitate gestures and play skills - ex. wave bye-bye, arms up for "up", making farm animals eat, etc.  Progress made, with cues.
  • Jackson will use both hands in midline (one holds, one manipulates).  Progress made, with cues.
  • Jackson will participate in book related activities such as scanning, maintaining visual attention, turning 2 -3 pages, looking at pictures, and pointing to pictures.  Progress made, with cues.
  • Jackson will participate in nursery rhymes, songs and fingerplays - maintain attention, imitate gestures, initiate movements, anticipate phrases, and vocalize during songs.  Progress made, with cues, ongoing.
Goals for the Next Six Months - 
  • Jackson will comply with simple commands and perform requested actions.
  • Jackson will demonstrate a developing vocabulary by pointing to named pictures and identifying familiar objects by their use or description.
  • Jackson will demonstrate understanding of one to one correspondence.
  • Jackson will imitate play skills and use objects to represent other objects.
  • Jackson will select hand holding toy and play other memory games.
  • Jackson will participate in nursery rhymes, songs and fingerplays - maintain attention, imitate gestures, initiate movements, anticipate phrases, and vocalize during songs.


Speech Therapy

Summary - Jackson has excellent imitation skills.  Given 1-2 models and/or verbal reminders from a therapist he will typically attempt an imitation of simple phenomes and CV, VC syllables with good accuracy.  He is interested in a variety of therapy activities, particularly books accompanied by manipulatives.  Jackson is able to maintain attention to task for the majority of a therapy session, at least 20 minutes at a time.  He does display some frustration (ex. throwing his head back) when he does not want to complete a task but this has been observed minimally within 1:1 therapy.  Jackson has been more willing to imitate and utilize simple words when working 1:1 in the therapy room, versus the classroom.

Progress Towards Goals -
  • Increase imitation and use of vocalizations and word approximations for a variety of functional purposes.  Jackson has begun to imitate and utilize "more, please, in, on, knock-knock (na-na), go, boo, eat" etc. when engaged in simple activities and play.  He is also imitating animal sounds in more consistency and has been responsive to the prompt to "Watch my face" as this therapist models sound and syllable production.
  • Increase overall receptive and expressive vocabularies:  We have targeted vocabulary sets for animals and common objects.  Jackson enjoys looking at books containing photographs of targeted vocabulary words and has been receptive to use of flashcards as well when working on word identification (ex. "Touch the doggie.").
Goals for the Next Six Months - 
  • Jackson will imitate and then independently utilize new consonant sounds, sound combinations, word approximations and simple words in an attempt to comment and request.
  • Jackson will increase his vocabulary by at least 15-20 words, as observed by his ability to identify and label familiar people, body parts, objects, pictures, and places in his environment.
  • Jackson will imitate and then independently utilize simple sign language as necessary to make his wants and needs known.


Special Ed (Toddler Developmental Group)

Summary - Jackson is a sweet, shy, quiet, and sociable little boy.  He has only been attending developmental group for a few weeks.  In the beginning, he struggled with the transition from family to school.  Has has gotten much better.  He comes in happy now and separates without a problem.  He enjoys the company of his peers and will roll his chair over to them or smile and roll a ball to them.  He is still adjusting to school and seems to be tired at the end of the morning.  He will play by himself or with a peer happily for several minutes.  He sometimes needs reminders to share.  He demonstrates more skills in 1:1 settings as he tends to focus on his peers in a group setting.

Progress Towards Goals - 
  • Use a combination of words, signs, and gestures to make his wants and needs known:  Jackson is still very quiet in the classroom.  He is also getting used to the classroom environment.
  • Transition between activities on request:  Jackson's transitions are slowly improving, but he still needs adult support to leave preferred activities on request.
Goals for the Next Six Months - 
  • Use a combination of words, signs, and gestures to make his wants and needs known.
  • Transition between activities on request.
  • Become more independent in his self help skills (hand washing, dress/undress upper body).


And there you have it - Jackson's progress for the last six months and his new goals.  He's made tremendous progress with the help of all of his awesome therapists.  We can't wait to see wait the next six months bring.  :-)

Til next time,






I was going to include a therapy pic as this post is all about Jackson's therapy but...I ran across these pics and thought they were too cute to hold on to.  We've taken a biker pic the day of the SOA season premiere for the past two years now.  He's grown up so much in the past year, yet he still fits into that onesie (barely).



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I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


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About Me

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Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
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