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So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

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    So, on Monday Jackson was super active, like rolling, flipping, kicking all day.  It was the weirdest thing.  He had never been that active....

Catch-Up! {South Carolina Bound}

We went to South Carolina for a few days right after Thanksgiving.  I wish I could say it was for fun but sadly it was not.  Jason's Great Uncle Paul passed away right before Thanksgiving after a battle with leukemia.  Both Jason and his parents expressed their desire to attend the funeral and neither Jackson or I had ever met Uncle Paul or Aunt Marie or anyone else from that side of the family.  So, we all decided to drive down together to attend the services. 

Uncle Paul
We left in the wee hours of the morning the Friday after Thanksgiving and were back home EARLY Monday morning (or very late Sunday night - however you want to look at it).  It took us 15 hours to get down there and a little over 17 to get back.  We stopped for dinner on the way back and encountered huge traffic jams due to accidents and the post-Thanksgiving travel.  Jason drove most of the time but we each took a little turn here or there.  We took my car so it was a little cramped but not too bad.  At least it wasn't in the front seat.  I'm not sure that Ken or Pam would say the same sitting in back with Jackson.  ;)  I packed more than enough to keep Jackson occupied and happy for the ride - DVD player, toys, books, food, etc.  We did stop about once a state for a leg stretch and diaper change.  He did great!  And it really helped that Grandma and Grandpa were in the back seat with him to keep him company.

We got to Walterboro, SC in time to check into a hotel and for Pam and Ken to attend calling hours.  Jackson, Jason and I decided to stay back at the hotel so Jackson could get some dinner and chill in the hotel room.  Which meant rolling all over the room.  Uncle Paul's family was so surprised that we were able to make it down there.  We hadn't told them we were coming. 

Saturday was the funeral service.  Jackson didn't want anything to do with a Southern Baptist service.  We tried it, but as soon as the choir started their first hymn he was screaming.  It was too loud for him.  In an effort to not further disrupt the service, he and I went outside and hung out in the side yard.  After the service we went to the cemetery where Uncle Paul received a military burial.  Jackson and I stayed in the car as we anticipated the gun salute would not go well either. 

After a nap back at the hotel, we met Jason's parents over at Aunt Marie's house and spent some time with the family.  It was great to meet everyone and get to know them a little more.  Jackson was loving the attention!  It would've been nicer to have met them under better circumstances but we are very glad that we were able to make the trip. 

Here are some pictures from the trip.

The boys all sleeping.  Ken slept most of the way down and back.  Lucky dog!
Jax hanging out with Boppy at the hotel enjoying the nice weather.

Beautiful Blue Eyes
Tree at the cemetery
Jason and Ken at the cemetery
Ken and Pam with Uncle Paul's flag and plaque.
All of us with Aunt Marie
At T.G.I.Fridays in PA scooping out the drink menu.

Rest in peace Uncle Paul.  I'm sorry that Jackson and I were never able to meet you in person but from all the stories I had heard that weekend I feel like we did know you.  And many thanks to our SC family for the hospitality.  I hope it's not long before we see you all again.

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I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


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      • Happy Birthday Duke!
      • Catch-Up! {First Snow}
      • Catch-Up! {Christmas 2012}
      • Project: Pinterest - {Energy in a Jar}
      • Here's What's Happening in Jackson's World: Jacks...
      • Catch-Up! {December 2012}
      • Catch-Up! {South Carolina Bound}
      • Catch-Up! {Halloween 2012}
      • It's January 7th.....
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About Me

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Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
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