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Welcome! Welcome!

So, what’s my blog about? A little bit of this, a little bit of that, tons about Jackson and a sprinkle of Spina Bifida awareness. Why? Because that’s our life and we want to share it with you. Hope you enjoy!

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Here's What's Happening in Jackson's World: Jackson's Week with a Stander

Last month I shared some pictures and videos of Jackson trying out some equipment over at Korpiel Physical Therapy.  Go here to check out that post.  We got to take the stander home for a week and try it out.

And the final verdict is - Jackson loved it!  It gave him so much more independence and there were so many more things to see and do.  You know, more cupboards and drawers to open and close! 


One of the reasons for taking the stander home with us was so that we could document how he responded to it.  We kept a journal throughout the week so that we could present it to his therapists and they in turn could use that info in their letters of justification to send to the insurance company.  We also took lots of pictures and videos too. 

Here are the journal entries for your viewing pleasure.  It's a nice review of all of the fun stuff he did that week.





This is also when one of the first times that he's been able to "play" with his cousins at their level.  Usually they get down on the floor to play with him.  But, while we were at Denise and Amanda's house decorating gingerbread houses he was able to hang out at the table by himself and not in a high chair or on someone's lap.  He also was able to leave the table and go see what the other kids were doing and go follow them around the house.  That night was actually one of the times that he was in the stander for over an hour.  He would've stayed in it longer but we could tell that he was getting fatigued.



Most of his therapy sessions that week were done in the stander.  He also played with some toys up to a table which put him at a different eye level with them.  He also got to play pool with Mommy and Daddy and bang on some drums.  He was very excited to do that.  In fact, he got mad when we told him we were all done and time to go to bed! 

Here's a video of Jax cruising around at home in the stander:


We've also got a video of Jax playing pool with Daddy:


And, another video of Jackson banging away on the drums:


I really wanted to get another video of him playing pool and banging on the drums but the batteries died in my camera and there were no more to be found in the house.  Boo!  Although, in hindsight I'm sure there were a ton of toys I could've stolen borrowed some batteries from. 

** Update - As it stands right now, we should be getting both the wheelchair and the stander.  Additionally, all costs should be covered by our insurance with the EI program picking up the remaining balance.  What a blessing!!!  There was a lot of paperwork to fill out and right now we are waiting for our insurance to approve the requests.  They say it will be a month or two before we get them.  Hopefully sooner rather than later!  Jackson was so happy that week and loved his new-found independence and we want him to experience that again.

And now, let's finish off this post with some more pictures, shall we?  ;)

He spent more time playing with the drawers on the china cabinet than with the toy, but who cares?  He was having a blast!

Peek-a-boo!  I see you!

"I got this shot Dad!  Let me take it!"

Baby Pool Shark

Little Drummer Boy!

Had so much fun bang-bang-bangin' on the drums!

Peace out.  'Til next time.

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I started this blog as a way to keep family and friends, near and far, up-to-speed on what was going on with Jackson. Jackson was born with Spina Bifida and Hydrocephalus. When he was born, he had to have surgery to close the lesion on his back and then had a follow-up a month later for his shunt placement. My goal was to make sure everyone got an updateon how things were going and what better way to mass-update then the good ole interweb ;) And since everyone isn't on FB (WHAT!?!), I figured that a blog would be the next best thing.


Since then, the blog has morphed into a plethora of stuff ranging from date nights, favorite recipes (okay, haven't posted any recipes yet, but they are in the works), our dog, our house, my awesome hubby, projects from Pinterest that I actually complete, SB awareness and what's going on in Jackson's world. I'll be honest, it's 73% about Jackson and raising a child with SB, at least according to my last calculation. Oh, and pictures. Lots of pictures.


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About Me

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Robin
Gorham, New York, United States
I’m a notorious procrastinator, a Martha Stewart wanna-be (minus the orange jump suit), and I have a high attention to detail, although some people might just consider me a control freak, perfectionist pain-in-the-arse! Oh yeah, and I’m a tad sarcastic. I've been married to my best friend for 5 years and we have one amazing little toddler, Jax. Our other "baby" is a 4 year old Great Dane who thinks he's a lap-dog. All in all, I love my life!
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